Clare Marantelli

I'm participating in the SFSuper Series Big Feet & Little Feet (which is the Pub2Pub Fun Run) to support the Sanfilippo Children's Foundation, in particular my little mate, Jobe.

Sanfilippo Syndrome is a rare, genetic condition that causes fatal brain damage in children. It’s referred to as a childhood disease as most patients never reach adulthood. Jobe, his brother Tate, and his mum and dad are so important to me and my family. What they are going through breaks my heart and I can't think of anything more important to raise funds for then a way to kick this disease in the butt.

For more information on Jobe's journey check out https://www.facebook.com/hopeforjobe/

Your donation will help search for a cure and enable a better quality of life for future generations of children born with Sanfilippo Syndrome. All donations over AU $2 are fully tax deductible.

Thanks so much for your support.