Leanne Miller and Jaye Wilson

We imagine a future where no child suffers from Sanfilippo Syndrome.

I'm inspired by my beautiful friend and her hard work raising money for Sanfilippo Children's Foundation and wanted to support them by raising money as part of my participation in Tough Mudder SEQ 2019.

Her gorgeous son Alec has Sanfilippo Syndrome which is a rare genetic condition (occurring only 1 in 1.5 million births) that causes fatal brain damage. It is referred to as a childhood disease because most patients never reach adulthood.

I'm challenging myself but I know it's nothing compared to the challenge facing kids with Sanfilippo.

100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

To find out more about the disease you can visit https://www.sanfilippo.org.au/page/26/what-is-sanfilippo

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.