Jen EadesGreen

I’m pushing myself beyond my comfort zone and will be running 30km in the Brisbane Ultra Trail Run in July. It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.

I joined this team to help out the amazing Morrice family with their son Alec and all the other families like them who battle daily with Sanfilippo syndrome. It is a rare and debilitating childhood disease and we need your help to fund research.

We imagine a future where no child suffers from Sanfilippo Syndrome.

100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.