Dialog Box

$1,503
raised of
$1,000 goal
Thanks to
16 supporters
2 / 3 Badges

We imagine a future where no child suffers from Sanfilippo Syndrome.

I'm running in the Brisbane Ultra Trail Run in July 2019. It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.

100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible.

Thanks so much for your support.

My Updates

18 Jun 2019

Sanfilippo is a devastating neurodegenerative disease. It is a rare genetic condition that causes fatal brain damage. It is referred to as a childhood disease because most patients never reach adulthood.

1 in 70,000 children is born with the inherited condition which is caused by an enzyme deficiency.

More info: https://www.sanfilippo.org.au/page/26/what-is-sanfilippo

Sanfilippo Children's Foundation is dedicated to progressing clinical research into effective treatment.

Geoff has 16 supporters

Donate