Celso's Fundraising Page

Hello family and friends, Stephanie and I are going to be running for charity to raise much needed funds towards research for the fatal children’s disease - Sanfilippo Syndrome. We imagine a future where no child suffers from Sanfilippo Syndrome and will be running for Alec, a very special family member who has been diagnosed with this devastating condition.

We will be running in the Brisbane Ultra Trail Run in July 2019 with a great bunch of other likeminded people. It's going to be a big challenge but well worth it. But this is nothing compared to the challenge facing these kids with Sanfilippo and the loving parents who stay the course for these children. It is an honour to be part of Helix Heroes supporting the SF Super Series but a bigger honour to also being a team member of HOPE FOR ALEC.

100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.

All donations over AU $2 are fully tax deductible. So if you find it in your hearts to make a donation, small or large, the link to my donation page is below.
https://evenico-sfss.azurewebsites.net/my-fundraising/516/celsos-fundraising-page

Thanks so much for your support.