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We imagine a future where no child suffers from Sanfilippo Syndrome.
I'm running in the Brisbane Ultra Trail Run in July 2019. It's going to be a big challenge. But it's nothing compared to the challenge facing kids with Sanfilippo.
100% of your donation will go towards funding vital research projects that show potential to halt disease progression; repair damage caused by the condition; or improve the quality of life for children suffering from Sanfilippo.
All donations over AU $2 are fully tax deductible.
Thanks so much for your support.
106 days ago
Well done! Amazing work xx
107 days ago
Hi Stephanie, hope you survived the day and didn't up too sore afterwards. Good on you. Chris x
108 days ago
Go Steph! You’re amazing doing this!
Go Mich! So proud of you ❤️ Love mich and Jules x
109 days ago
Go hard Jen! You’re amazingly.
Lots of admiration for everyone doing the run today, when most of us are curled up on the couch!!
You’ve got his Jess!! Wish I could be out there running with you ❤️❤️❤️
You go girl!
110 days ago
From mum. Good luck darling...We are so very proud of you xxoo
Great work Kirst xo
Good luck Jess. So proud of you.
111 days ago
Go Uncle Celso!
Love Lillian and Lysander xxxxxooooo
Good luck Steph. You are an inspiration!
Just a little help for the run on the day mum & dad
112 days ago
Good luck Steph
Run safe Steph
Keep smiling team
Keep smiling Jen
Go Michelle!! Xx
113 days ago
Best wishes for the run and for Alec :)
Good luck Steph. Hope your run goes well and you have a favourable outcome.
Have a safe run Steph. Great work supporting a worthy cause.
I will pray to God .Alec will be better soon.
Great work, Steph! Not only in supporting such a cause but really getting out of your comfort zone!
115 days ago
I know you can do it Michelle. 💜 you and your fam!
116 days ago
Hi Stephanie, I hope this helps. Thank you for all you do for this great cause.
You've got this, will be so rewarding to cross the line.
So proud of you 💕
Good luck Jen, such a great cause. 💕
117 days ago
Constantly impressed by what you can do. Amazing lady! Will be there supporting you all the way!
Very proud of your efforts Jen Jen and a wonderful cause 🎀🎀💜💜
Go Lea your a champ mate
118 days ago
125 days ago
Good luck Jenny!! I bet you’ll kick butt!
126 days ago
You are all champions for doing this for such a worthy cause... and it’s made you a runner too!
Keep up the fight.
Good luck Michelle!! You are inspirational!!
127 days ago
128 days ago
Anaconda BBQ Proceeds
129 days ago
Anaconda BBQ Proceeds
130 days ago
132 days ago
A great initiative and worthwhile cause Celso.
135 days ago
Love Ella and Jed
136 days ago
All the best champion great cause
137 days ago
Good luck and best wishes for the little boy
Love your work. Good luck mate.
Go hard mate, Champion effort!!!
From The Boys at West Village
Go hard or go home old man. Great effort.
140 days ago
Dont fall over this time
141 days ago
Keep up the great work!
151 days ago
Carey & Jude
157 days ago
You can do it! Icefire physiology are proud to have you on our team.
166 days ago
174 days ago
Awesome cause! Go Jess!!!
182 days ago
Go the Perez’s!! 💪🏽💪🏽xo
184 days ago
Good luck daddy. Please look after mummy on your run.
Good luck mummy, I know you will do great on your run. I
Nice one Kerri, hope you reach your goal.
Both you and Michelle are amazing, best of luck!
Great cause and a great effort!!! Look forward to hearing this goes!
185 days ago
205 days ago
You are an absolute inspiration! So proud of you ! You're an amazing human ❣️❣️
224 days ago
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